How many people suffer from a specific disease? Who will develop which symptoms and when? How severe will they be? These are only some of the very important questions that a patient registry or an observational study may answer.
Gathering information about a patient’s medical history on a specific disease, allows researchers to more accurately estimate both the prevalence and incidence of the disease, and to determine their natural history. This information will help manage the disease more effectively, give patients better advice, and improve care pathways and life expectancy.
At CORONIS we understand the vital role of registries, especially for companies developing new therapeutic paths for chronic and rare diseases and we commit in the production of quality data.